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PENGALAMAN IBU TERHADAP KEHADIRAN ANAK DENGAN GANGGUAN KESEHATAN KRONIK

gangguan tidur klien kualitas tidur lansia

Abstract

Abstrak

Penelitian ini bertujuan untuk menggali respon ibu yang mempunyai anak dengan gangguan kesehatan kronik. Manfaat penelitian ini adalah sumber pengetahuan baru bagi perawat tentang pengalaman, arti pengalaman tersebut bagi ibu dan pengaruhnya pada ibu. Pengetahuan ini akan dapat digunakan untuk meningkatkan kemampuan perawat dalam melakukan pengkajian dan memberikan asuhan keperawatan kepada ibu. Pengambilan sampel menggunakan teknik “purposive sampleâ€, yaitu ibu yang memiliki anak dengan gangguan kesehatan kronis. Jumlah sampelnya adalah lima orang, yang diwawancara dengan mendalam selama satu jam. Metode penelitian yang digunakan adalah fenomenologi, yang merupakan metoda yang paling sesuai untuk menggali pengalaman seorang ibu tentang suatu kejadian. Data dikumpulkan melalui wawancara semi terstruktur dengan menggunakan beberapa pertanyaan tentang bagaimana perasaan, pikiran dan perasaan menjadi ibu dari seorang anak yang mengalami gangguan perkembangan atau menderita penyakit kronis. Hasil wawancara direkam dengan menggunakan tape recorder dan kemudian dibuat transkripnya. Setelah itu data tersebut dianalisa dengan menggunakan “Colaizzi’s phenomenology methodsâ€. Hasil analisa data menggambarkan lima kategori yaitu respon emosi, keyakinan atau spiritual, kerja keras, sistim pendukung, dan interaksi dengan tenaga kesehatan.

 

Abstract:

The objective of the research is to identify mother’s experiences related to having child with chronic illness and developmental disability. This study used a phenomenology method to explore mother’s experience. Five mothers whose children with chronic illness and developmental disorder participated in two audio-taped interviews. Data were collected through seme-structured interview. Colaizzi’s phenomenology method was used to analyse the transcripts of the interviews. Five main categories were coded, which each category containing a number of themes. Five main categories were found including emotions, beliefs or spiritual responses, interaction with staffs, support systems, and work hard.

References

  1. Barakat, L. P. &Linney, J. A. (1992). Children with physical handicaps and their mothers: The Interrelation of social support, maternal adjustment and child adjustment. Journal of Pediatric Psychology, 17(6): 752-739.
  2. Cutliffe, J. R. (1999). Qualified nurses’lived experince of violence perpetrated by individuals suffering from enduring mental health problems: Hermeneutic study. International Journal of Nursing Studies, 36: 105-116.
  3. Cutcliffe, J. R. & McKenna, H. P. (1999). Establishing the credibility of qualitative research findings: The plot thickens. Journal of Advanced Nursing, 30(2):374-385.
  4. Canam, C. (1993). Common adaptive tasks facing parents of children with chronic conditions. Journal of Advanced Nursing, 18: 46-53.
  5. Carter, M. A. (1993). Ethical framework for care of the chronically ill. Holistic Nurse Practice, 8(1): 67-77.
  6. Clubb, R. L. (1991). Chronic sorrow: Adaptation patterns of parents with chronically ill children. Pediatric Nursing, 17(5): 461-466.
  7. Draucker, C. B. (1999). The critique of heideggerian hermeneutical nuring research. Journal of Advanced Nursing, 30(2): 360-373.
  8. Damrosch, S. P. & Perry, L. A. (1986). Self-reported adjusment,chronic sorrow in families of disabled children. Journal of Child Neurology, 2(1): 67-70.
  9. Gross, G. J. & Howard, M. (2001). Mothers’ decision-making process regarding health care for their children. Public Health Nursing, 18(3):157-168.
  10. Glasscock, R. (2000). A phenomenological study of the experience of being a mother of a child with cerebral palsy. Pediatric Nursing, 26(4), 407-410.
  11. Kearney, P. M. & Griffin, T. (2001). Between joy and sorrow: being a parent of a child with developental disability. Journal of Advanced Nursing, 34 (5): 586-582.
  12. Kelly, A. F & Hewson, P. H. (2000). Factors associated with recurrent hospitalization in chronically ill children and adolesence. Journal Paediatric Child Health, 36, 13-18.
  13. Koch, T. (1995). Interpretative approachs in nursing research: The influence of Hussserl and Heideggerian. Journal of Advanced Nursing, 21: 827-836.
  14. Monsen, R. B. (1999). Mpthers’ experiences of living worried when parenting children with spina bifida. Journal of Pediatric Nursing, 14(3): 157-163.
  15. Newacheck, P. W. & Taylor, W. R. (1992). Childhood chronic illness: Prevalence, severity, and impact. American Journal of Public Health, 82(3): 364-370.
  16. Seidemen, R. Y. & Kleine, P. F. (1995). A theory of transformed parenting: Parenting a child with developmental delay/mental retardation. Nursing Research, (44(1): 38-44.
  17. Streubert, H. J. & Carpenter, D. R (1995). Qualitative research in nursing: Advancing the humanistic imperative. Philadelphia: J.B. Lippincot Company
  18. Wong, D., Perry, S. E., & Hockenberry, M. J. (2002). Maternal Child Nursing Care (2nd ed.). St. Luois: Mosby.

How to Cite

Syahreni, E., & Chodidjah, S. (2005). PENGALAMAN IBU TERHADAP KEHADIRAN ANAK DENGAN GANGGUAN KESEHATAN KRONIK. Jurnal Keperawatan Indonesia, 9(2). https://doi.org/10.7454/jki.v9i2.160