Skip to main content Skip to main navigation menu Skip to site footer
Articles
VIEWS: 539
Published: 2015-03-17

Pengalaman Keluarga dalam Merawat Penderita Sakit Kronis

Faculty of Nursing Universitas Indonesia
Fakultas Ilmu Keperawatan, Universitas Indonesia, Depok
Fakultas Ilmu Keperawatan, Universitas Indonesia, Depok
merawat pengalaman keluarga penyakit kronis

Abstract

Merawat anggota keluarga yang mengalami sakit kronis memengaruhi kehidupan anggota keluarga secara fisik, psikologis, dan sosial. Tujuan penelitian ini adalah mengetahui pengalaman keluarga dalam merawat anggota keluarga dengan penyakit kronis. Metode penelitian yang digunakan, yaitu kualitatif dengan pendekatan fenomenologi deskriptif. Partisipan merupakan delapan keluarga yang merawat anggota keluarga dengan sakit kronis. Tema yang ditemukan mencakup perubahan status kesehatan penderita, respons psikologis keluarga, upaya untuk mempertahankan kesehatan, dan harapan keluarga. Simpulan penelitian menggambarkan respons yang dialami oleh keluarga berbeda bergantung pada onset, lama, dan prognosis penyakit serta tahapan stres yang dialami keluarga. Perawat dapat memberikan manajemen asuhan keperawatan kepada keluarga berupa intervensi pendidikan kesehatan mengenai penyakit kronis, psikoedukasi, dan konseling keluarga dalam merawat penderita sakit kronis.

 

Abstract

The Experience of Family Caregivers of Persons with Chronic Illness. Caring for family member with chronic illness affects the lives of family physically, psychologically, and socially. The aim of this study was to describe the experience of family member in caring for family members with chronic illness. A qualitative design with descriptive phenomenological approach was chosen for this study. Qualitative interviews with eight families were performed. The results included a changed health status for the person with chronic illness, family psychological response, efforts of maintain health and family expectations about type and quality of health services. Conclusion of research illustrated that response experienced by families were different depending on the onset, duration, and prognosis of the diseases and the stage of stress experienced by the family. Thus nurses could provide nursing care to family with chronic illness which are consist of health education and counseling in order to caring for family members with chronic illness.

 Keywords: caregiver, chronic disease, family experience

References

  1. Allender, J.A., Rector, C., & Warner, K.D. (2010). Community health nursing: Promoting and protecting the public’s health (7th Ed.). Philadelphia: Lippincott Williams & Wilkins.
  2. The National Alliance for Caregiving and AARP. (2009). Selected caregiver statistic. Family Caregiver Alliance. Diperoleh dari http://www.caregiver.org/caregiver/jsp/content_node.jsp?nodeid=439
  3. Burns, N., & Grove, S.K. (2009). The Practice of nursing research: Appraisal, synthesis, and generation of evidence. St. Louis Missouri: Saunders Elsevier.
  4. Chao, M.T., Wade, C., & Kronerberg. (2006). Womens reason for complementary and alternative medicine use: Rasial ethnc difference. Journal of Altern Complemen Medicine. 12 (8), 719–720.
  5. Chen, LL., Huang, LC.,Lin, SC., Smith, M., Liu, SJ., (2009). Use of folk remedies among families of children hospitalize in Taiwan. Journal of Clinical Nursing. 18, 2162–2179.
  6. Demirtepe, D. (2008). Testing the caregiver stress model with the caregivers of children with leukemia (Thesis, Middle East Technical University). Middle East Technical University.
  7. Denham, S.A., & Looman, W. (2010). Families With Chronic Illness, dalam Kaakinen, et al, Family Health Care Nursing, Theory, Practice and Research (4th Ed.). F.A Davis Company: Philadelphia. Hal 235–272.
  8. Dinas Kesehatan Depok (2007). Profil dinas kesehatan depok Tahun 2007. Depok: Dinkes Depok.
  9. Fiese, B.H., & Everhart, R.S. (2006). Medical adherence and childhood chronic illness: Family daily management skills and emotional climate as emerging contributors. Current Opinion in Pediatrics, 18 (5), 551–557.
  10. Friedman, Bowden, & Jones. (2010). Family nursing: Research, theory, and parctice.. New Jersey: Prentice Hall.
  11. Gomes, C., Boas, V., & Foss, M. (2012). Relationship among social support, treatment adherence and metabolic control of DM patient. Rev-Latno Am, 20 (1), 52–58.
  12. Glasgow, R.E., Orleans, C.T., & Wagner, E.H. (2001). Does the Chronic Care Model serve also as a template for improving prevention? The Milbank Quarterly, 79(4), 579–612.
  13. Hilton, B.A., Crawford, J.A., & Tarko, M.A. (2000). Men’s Perspectives on Individual and Family Coping with Their Wive’s Breast Cancer and Chemotherapy. West Journal Nurse Res, 22, 438.
  14. Knafl, K.A., & Gilliss, C. (2002). Families and chronicc illness: A synthesis of current research. Journal of Family Nursing, 8 (3), 178–198.
  15. Kozier, B.J., Erb, G., Berman, A., & Snyder, S. (2004). Fundamental of nursing: Concept, process, and practice (7th Ed.). Upper Saddle River: Perason Education Inc.
  16. Lim, J., & Zebrack, B. (2004). Caring family members with chronic physical illness: A critical review of caregiver literature. Health and Quality of Lifes Outcomes, 2, 50. doi: 10.1186/1477-7525-2-50.
  17. Looman, W. S., O’Conner-Von, S. K., Ferski, G. J., & Hildenbrand, D.A. (2009). Financial and employment problems in families of children with special health care needs: Implications for research and practice. Journal of Pediatric Health Care, 23 (2), 117–125.
  18. Lovelace, L.M. (2012). The Effect of coping strategies on burden among male alzheimers caregivers (Thesis, Lousiana State University). B.S. Lousiana State University.
  19. Moalosi, G.F., Phatswane, J., Moeti, T., Binkin, N., & Kenyon. T. (2003). Cost-effectiveness of home based care versus hospital care for chronically ill tuberculoasis Patients, Francistown, Botswana. International Journal Tuberculosis Lung Disease, 7, 80–85.
  20. Pollit, D.F., & Beck, C.T. (2010). Essential of nursing research: appraising evidence for nursing practice. Philadelphia: Lippincot Williams & Wilkins.
  21. Smith, M., Greenberg, J., & Seltzer, M. (2007). Siblings of adults with schizophrenia: Expectations about future care giving roles. American Journal of Orthopsychiatry. 77, 29–37.
  22. Speziale, H.J.S. (2003). Designing data generation and management strategies. In Speziale, H.J.S., & Carpenter, D.R. (Ed.) Qualitative research in nursing: Advancing the humanistic imperative. Philadelphia: Lippincott Williams & Wilkins.
  23. Vedhara, K., Shanks, N., Anderson, S., & Lightman, S. (2000). The role of stressors and psychosocial variables in the stress process: A study of chronic caregiver stress. Psychosomatic Medicine, 62, 374–385.
  24. WHO. (2002). Integrated chronic disease prevention control. Diperoleh dari http://www.who.int/chp/about/integrated_cd/en/index.html.

How to Cite

Kartika, A. W., Wiarsih, W., & Permatasari, H. (2015). Pengalaman Keluarga dalam Merawat Penderita Sakit Kronis. Jurnal Keperawatan Indonesia, 18(1), 51–58. https://doi.org/10.7454/jki.v18i1.398