Post-Stroke Quality of Life Perceived by Patients and Caregivers

Gitalia Putri Medea, Elly Nurachmah, Muhamad Adam
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The quality of life (QOL) of post-stroke patients can be assessed from the reports of patients themselves obtained through a structured interview or a questionnaire. However, some individuals are unable to comprehensively describe their QOL because of language disorders, cognitive effects caused by stroke, or pre-existing conditions. This study aims to identify differences in post-stroke QOL perception between patients and caregivers. A cross-sectional design involving 115 stroke patients and 115 caregivers was adopted, and Mann–Whitney test was used for statistical analysis. Results showed no significant difference in QOL perception (p = 0.166; α < 0.05), particularly in the physical (p = 0.278; α < 0.05), psychological (p = 0.068; α < 0.05), social relationship (p = 0.976; α < 0.05), and environmental (p = 0.157; α < 0.05) domains between patients and caregivers. Therefore, information from caregivers can be used to assess QOL when patients are incapable of reporting their condition.



Kualitas Hidup Pasca Stroke yang Dipersepsikan oleh Pasien dan Caregiver. Kualitas hidup pasien pasca stroke dapat diketahui berdasarkan laporan dari pasien stroke dengan wawancara terstruktur atau dengan pengisian kuesioner. Namun, beberapa dari pasien stroke tidak dapat menggambarkan kualitas hidup mereka karena adanya gangguan bahasa dan efek kognitif lainnya akibat stroke atau kondisi yang sudah ada sebelumnya. Penelitian ini bertujuan mengidentifikasi perbedaan persepsi kualitas hidup antara perspektif pasien pasca stroke dan  caregiver. Penelitian ini menggunakan desain cross sectional yang melibatkan 115 pasien dan 115 caregiver dengan menggunakan analisis statistik Mann Whitney. Hasil analisis menunjukkan tidak terdapat perbedaan secara signifikan antara persepsi kualitas hidup dari pasien dan caregiver (p = 0,166 ; α < 0,05), khususnya pada domain fisik (p = 0,278; α < 0,05), psikologis (p = 0,068; α < 0,05), hubungan sosial (p = 0,976; α < 0,05), dan lingkungan (p = 0.157; α < 0,05) dari kualitas hidup yang dipersepsikan oleh pasien dan yang dipersepsikan oleh caregiver. Informasi dari caregiver dapat digunakan saat pasien tidak dapat memberikan informasi terkait kualitas hidupnya.

Kata Kunci: caregiver, kualitas hidup, persepsi, stroke


caregiver; perception of quality of life; stroke

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Anjos, K.F. dos, Boery, O., & Pereira, R. (2014). Quality of life of relative caregivers of elderly dependents at home. Texto & Contexto Enfermagem, 23 (3), 600–608. doi: 10.1590/0104-07072014002230013.

Ayerbe, L., Ayis, S., Wolfe, C.D.A., & Rudd, A.G. (2013). Natural history, predictors and outcomes of depression after stroke: Systematic review and meta-analysis. British Journal of Psychiatry, 202 (1), 14–21. doi: 10.1192/bjp.bp.111.107664.

Balhara, Y.P.S., Verma, R., Sharma, S., & Mathur, S. (2012). A study of predictors of anxiety and depression among stroke patient-caregivers. Journal of Mid-Life Health, 3 (1), 31–35. doi: 10.4103/0976-7800.98815.

Carey, L.M. (2012). Stroke rehabilitation: Insights from neuroscience and imaging. Oxford University Press, Inc.

Carod-Artal, F.J. (2012). Determining quality of life in stroke survivors. Expert Review of Pharmacoeconomics & Outcomes Research, 12 (2), 199–211. doi: 10.1586/erp.11.104.

Chuluunbaatar, E., Chou, Y.J., & Pu, C. (2016). Quality of life of stroke survivors and their informal caregivers: A prospective study. Disability and Health Journal, 9 (2), 306–312. doi: 10.1016/j.dhjo.2015.10.007.

Francois, S., Borgermans, L., Van Casteren, V., Vanthomme, K., & Devroey, D. (2014). Availability of informal caregivers in surviving stroke patients in Belgium. Scandinavian Journal of Caring Sciences, 28 (4), 683–688. doi: 10.1111/scs.12093.

Gbiri, C.A., & Akinpelu, A.O. (2012). Quality of life of Nigerian stroke survivors during first 12 months post-stroke. Hong Kong Physiotherapy Journal, 30 (1), 18–24. doi: 10.1016/j.hkpj.2012.01.004.

Guo, Y.L., & Liu, Y.J. (2015). Family functioning and depression in primary caregivers of stroke patients in China. International Journal of Nursing Sciences, 2 (2), 184–189. doi: 10.1016/j.ijnss.2015.05.002.

Hu, P., Yang, Q., Kong, L., Hu, L., & Zeng, L. (2018). Relationship between the anxiety/depression and care burden of the major caregiver of stroke patients. Medicine (Baltimore), 97 (40), e12638. doi: 10.1097/MD.0000000000012638.

Jette, A.M., Ni, P., Rasch, E.K., Appelman, J., Sandel, M.E., Terdiman, J., & Chan, L. (2012). Evaluation of patient and proxy responses on the activity measure for postacute care. Stroke, 43 (3), 824–829. doi: 10.1161/STROKEAHA.111.619643.

Kniepmann, K. (2012). Female family carers for survivors of stroke: Occupational loss and quality of life. British Journal of Occupational Therapy, 75 (5), 208–216. doi: 10.4276/030802212X13361458480207.

Lui, M.H., Lee, D.T.F., Greenwood, N., & Ross, F.M. (2012). Informal stroke caregivers’ self-appraised problem-solving abilities as a predictor of well-being and perceived social support. Journal of Clinical Nursing, 21 (1–2), 232–242. doi: 10.1111/j.1365-2702.2011.03742.x.

Ministry of Health Republic of Indonesia. (2014). Infodatin: Situasi kesehatan jantung [in Indonesian]. Pusat Data dan Informasi Kementerian Kesehatan RI. Retrieved from

National Alliance for Caregiving & AARP. (2015). Caregiving in the US 2015: Final report. National Alliance for Caregiving and AARP, Public policy institute. Retrieved from

National Institute of Health Resarch and Development. (2013). Riset kesehatan dasar 2013 [in Indonesian]. Retrieved from

Oczkowski, C., & O’Donnell, M. (2010). Reliability of proxy respondents for patients with stroke: A systematic review. Journal of Stroke and Cerebrovascular Diseases, 19 (5), 410–416. doi: 10.1016/j.jstrokecerebrovasdis.2009.08.002.

Pei, L., Zang, X.Y., Wang, Y., Chai, Q.W., Wang, J.Y., Sun, C.Y., & Zhang, Q. (2016). Factors associated with activities of daily living among the disabled elders with stroke. International Journal of Nursing Sciences, 3 (1), 29–34. doi: 10.1016/j.ijnss.2016.01.002.

Pinedo, S., SanMartin, V., Zaldibar, B., Miranda, M., Tejada, P., Erazo, P., Lizarraga, N., Aycart, J., Gamio, A., Gomez, I., & Bilbao, A. (2017). Quality of life of stroke patients and their caregivers. International Journal of Physical Medicine & Rehabilitation, 5 (1), 1–6. doi: 10.4172/2329-9096.1000387.

Purnomo, A. M., Sengkey, L.S., & Damopolii, C.A. (2016). Angka kejadian afasia pada stroke di Instalasi Rehabilitasi Medik RSUP Prof. Dr. R.D. Kandou Manado tahun 2015. E-CliniC, 4 (2), 1–6. doi: 10.35790/ecl.4.2.2016.14346.

Rachpukdee, S., Howteerakul, N., Suwannapong, N., & Tang-aroonsin, S. (2013). Quality of life of stroke survivors: A 3-month follow-up study. Journal of Stroke and Cerebrovascular Diseases, 22 (7), e70–e78. doi: 10.1016/j.jstrokecerebrovasdis.2012.05.005.

Rouillard, S., De Weerdt, W., De Wit, L., & Jelsma, J. (2012). Functioning at 6 months post stroke following discharge from inpatient rehabilitation. South African Medical Journal, 102 (6), 545–548. doi: 10.7196/samj.5488.

Singhpoo, K., Charerntanyarak, L., Ngamroop, R., Hadee, N., Chantachume, W., Lekbunyasin, O., Sawanyawisuth, K., & Tiamkao, S. (2012). Factors related to quality of life of stroke survivors. Journal of Stroke and Cerebrovascular Diseases, 21 (8), 776–781. doi: 10.1016/j.jstrokecerebrovasdis.2011.04.005.

Vellone, E., Savini, S., Simeone, S., Barbato, N., Castrovillano, G., Caramia, M.D., & Alvaro, R. (2011). Reliability of caregivers in assessing the quality of life of stroke survivors: an explorative study. Assistenza Infermieristica e Ricerca, 30 (4), 180–188. doi: 10.1702/1007.10956.

World Health Organization. (2015). Indonesia: WHO statistical profile. Country Statistics and Global Health Estimates. World Health Organization. Retrieved from

Zimmerman, E., & Woolf, S.H. (2014). Understanding the relationship between education and health. Discussion Paper, Institute of Medicine, Washington, DC. Retrieved from


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