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Jurnal Keperawatan Indonesia
Articles
VIEWS: 140
10.7454/jki.v28i1.1337
Submitted: 2023-12-22
Published: 2025-03-31

Resilience, Social Support, and Quality of Life Among People Living with HIV/AIDS

Department of Medical Surgical Nursing, Faculty of Health Sciences, Universitas Muhammadiyah Surabaya, Surabaya 60113, Indonesia
Department of Medical Surgical Nursing, Faculty of Nursing, Universitas Indonesia, Depok 16424, Indonesia
Department of Medical Surgical Nursing, Faculty of Nursing, Universitas Indonesia, Depok 16424, Indonesia
HIV/AIDS resilience social support quality of life

Abstract

One of the most common challenges faced by people living with human immunodeficiency virus/acquired immune deficiency syndrome (HIV/AIDS) is a low quality of life, particularly during the coronavirus disease 2019 (COVID-19) pandemic, as they are considered a vulnerable group. This study aimed to examine the relationship between resilience, social support, and quality of life among people living with HIV/AIDS during the pandemic. Conducted as a cross-sectional study, it involved 433 respondents. Data collection was carried out using a questionnaire, with Connor–Davidson Resilience Scale-25 (CD-RISC-25), Multidimensional Scale of Perceived Social Support (MSPSS), and World Health Organization Quality of Life–HIV Brief Version (WHO QoL-HIV-BREF) as the study instruments. The results indicated that resilience and social support were significantly associated with quality of life (p = 0.000; p = 0.000). Multiple logistic regression analysis identified resilience as the dominant factor influencing quality of life in people living with HIV (OR = 59.533). Respondents with high resilience were found to have a 59.53 times greater likelihood of experiencing a good quality of life compared to those with medium and low resilience after adjusting for marital status, income status, and length of time since HIV diagnosis. Resilience plays a crucial role in determining a person’s quality of life. HIV patients who actively participated in foundation-based assistance demonstrated greater optimism and a more positive acceptance of their condition, enabling them to cope with difficulties better.

Keywords: HIV/AIDS, resilience, social support, quality of life

 

Abstrak

Resiliensi, Dukungan Sosial, dan Kualitas Hidup Penderita HIV/AIDS. Salah satu tantangan yang paling umum dihadapi oleh penderita HIV/AIDS adalah rendahnya kualitas hidup, terutama saat pandemi COVID-19, karena mereka termasuk dalam kelompok rentan. Penelitian ini bertujuan untuk menguji hubungan antara resiliensi, dukungan sosial, dan kualitas hidup pada orang dengan HIV/AIDS di masa pandemi. Penelitian ini merupakan penelitian cross-sectional yang melibatkan 433 responden. Pengumpulan data dilakukan dengan menggunakan kuesioner Connor–Davidson Resilience Scale-25 (CD-RISC-25), Multidimensional Scale of Perceived Social Support (MSPSS), dan World Health Organization Quality of Life–HIV Brief Version (WHO QoL-HIV-BREF) sebagai instrumen penelitian. Hasil penelitian menunujukkan bahwa resiliensi dan dukungan sosial memiliki hubungan yang signifikan dengan kualitas hidup (p = 0,000; p = 0,000). Analisis regresi logistik berganda menunjukkan bahwa resiliensi merupakan faktor dominan yang memengaruhi kualitas hidup orang dengan HIV (OR = 59,533). Responden dengan resiliensi tinggi memiliki kemungkinan 59,53 kali lebih besar untuk memiliki kualitas hidup yang baik dibandingkan dengan responden dengan resiliensi sedang dan rendah, setelah mempertimbangkan status perkawinan, pendapatan, dan durasi sejak didiagnosa HIV. Resiliensi berperan penting terhadap kualitas hidup seseorang. Pasien HIV yang terlibat aktif dalam mengikuti pendampingan berbasis lembaga menunjukan sikap yang lebih optimis dan penerimaan yang lebih positif terhadap kondisi mereka, sehingga membuat mereka mampu menghadapi tantangan dengan lebih baik.

Kata Kunci: dukungan sosial, HIV/AIDS, kualitas hidup, resiliensi

References

  1. Asdiwinata, I.N., Lisnawati, N.K., & Sari, N.K.S.Y. (2021). Resilience associated with quality of life in people with HIV/AIDS. Jurnal Ilmu Keperawatan Jiwa, 4 (2), 273–280.
  2. Centers for Disease Control and Prevention (CDC). (2016). HIV and substanse use. Retrieved from: https://www.cdc.gov/hiv/pdf/risk/cdc-hiv-substanceuse.pdf
  3. Dida, N.I., Yona, S., & Waluyo, A. (2021). HIV disclosure, stigma, and stress impacting quality of life of housewives with HIV in Kupang, Indonesia: A cross-sectional study. Enfermería Clínica, 31 (Supplement 2), S266–S270. doi: 10.1016/j.enfcli.2020.09.013.
  4. Dorward, J., Khubone, T., Gate, K., Ngobese, H., Sookrajh, Y., Mkhize, S., Jeewa, A., Bottomley, C., Lewis, L., Baisley, K., Butler, C.C., Gxagxisa, N., & Garrett, N. (2021). The impact of the COVID-19 lockdown on HIV care in 65 South African primary care clinics: An interrupted time series analysis. The Lancet HIV, 8 (3), e158–e165. doi: 10.1016/S2352-3018(20)30359-3.
  5. Edianto, E., Waluyo, A., Yona, S., & Martiana, I. (2020). Correlation between disclosure status and stress in men who have sex with men with HIV. Jurnal Keperawatan Indonesia, 23 (3), 155–161. doi: 10.7454/jki.v23i3.1101.
  6. Firman, F., Yona, S., & Allenidekania, A. (2022). The role of social support on resilience in people living with HIV/AIDS: A systematic literature review. Qanun Medika: Medical Journal Faculty of Medicine Muhammadiyah Surabaya, 6 (2), 163–174. doi: 10.30651/jqm.v6i2.12922.
  7. Hayati, H., Nurhaeni, N., Wanda, D., & Nuraidah, N. (2023). Understanding the experiences of caregivers of HIV-exposed children under five: A phenomenological inquiry. Belitung Nursing Journal, 9 (2), 152–158. doi: 10.33546/bnj.2479.
  8. Jennings, K.M. (2017). The Roy adaptation model: A theoretical framework for nurses providing care to individuals with anorexia nervosa. Advances in Nursing Science, 40 (4), 370–383. doi: 10.1097/ans.0000000000000175.
  9. Kuiper, H., van Leeuwen, C.C.M., Stolwijk-Swüste, J.M., & Post, M.W.M. (2019). Measuring resilience with the Connor–Davidson Resilience Scale (CD-RISC): Which version to choose?. Spinal Cord, 57 (5), 360–366. doi: 10.1038/s41393-019-0240-1.
  10. Kurniawan, R., Waluyo, A., & Yona, S. (2021). Kesejahteraan spiritual orang dengan HIV/AIDS selama pandemi COVID-19: Literatur review. Jurnal Keperawatan, 13 (2), 343–354. doi: 10.32583/keperawatan.v13i2.1183.
  11. MacLean, J.R., & Wetherall, K. (2021). The association between HIV-Stigma and depressive symptoms among people living with HIV/AIDS: A systematic review of studies conducted in South Africa. Journal of Affective Disorders, 287, 125–137. doi: 10.1016/j.jad.2021.03.027.
  12. Martiana, I., Waluyo, A., Yona, S., & Edianto, E. (2021). A secondary analysis of peer support and family acceptance among homosexuals living with HIV and antiretroviral therapy: Quality of life perspectives. Jurnal Keperawatan Indonesia, 24 (1), 1–8. doi: 10.7454/jki.v24i1.1095.
  13. Ministry of Health Republic Indonesia. (2021). Penguatan sistem kesehatan dalam pengendalian Direktorat Jenderal Pencegahan dan Pengendalian Penyakit. Retrieved from: https://p2p.kemkes.go.id/penguatan-sistem-kesehatan-dalam-pengendalian-COVID-19/.
  14. Oladunni, A.A., Sina-Odunsi, A.B., Nuga, B.B., Adebisi, Y.A., Bolarinwa, O.A., Adeola, A.A., & Lucero-Prisno, D.E. (2021). Psychosocial factors of stigma and relationship to healthcare services among adolescents living with HIV/AIDS in Kano state, Nigeria. Heliyon, 7 (4), e06687. doi: 10.1016/j.heliyon.2021.e06687.
  15. Prabhu, S., Poongulali, S., & Kumarasamy, N. (2020). Impact of COVID-19 on people living with HIV: A review. Journal of Virus Eradication, 6 (4), 100019. doi: 10.1016/j.jve.2020.100019.
  16. Putera, A.M., Irwanto, I., & Maramis, M.M. (2020). Quality-of-life (QoL) of Indonesian children living with HIV: The role of caregiver stigma, burden of care, and coping. HIV/AIDS - Research and Palliative Care, 12, 573–581. doi: 10.2147/HIV.S269629.
  17. Rosnaini, R., Gobel, F.A., & Multazam, A. (2021). Hubungan dukungan sosial dengan kualitas hidup ODHIV di Yayasan Peduli Kelompok dukungan sebaya makassar. Window of Public Health Journal, 1 (5), 454–464. doi: 10.33096/woph.v1i5.158.
  18. Rzeszutek, M. (2018). Health-related quality of life and coping strategies among people living with HIV: The moderating role of gender. Archives of Women’s Mental Health, 21 (3), 247–257. doi: 10.1007/s00737-017-0801-2.
  19. Safitri, I.M. (2020). Relationship between socioeconomic status and family support with quality of life of people living with HIV and AIDS. Journal PROMKES: The Indonesian Journal of Health Promotion and Health Education, 8 (1), 21–35. doi: 10.20473/jpk.v8.i1.2020.21-35.
  20. Safren, S.A., Thomas, B., Biello, K.B., Mayer, K.H., Rawat, S., Dange, A., Bedoya, C.A., Menon, S., Anand, V., Balu, V., O'Cleirigh, C., Klasko-Foster, L., Baruah, D., Swaminathan, S., & Mimiaga, M.J. (2021). Strengthening resilience to reduce HIV risk in Indian MSM: A multicity, randomized, clinical efficacy trial. The Lancet Global Health, 9 (4), e446–e455. doi: 10.1016/S2214-109X(20)30547-7.
  21. Sari, Y.K., & Wardani, I.Y. (2017). Dukungan sosial dan tingkat stres orang dengan HIV/AIDS. Jurnal Keperawatan Indonesia, 20 (2), 85–93. doi: 10.7454/jki.v20i2.361.
  22. Shoimatul, S., Waluyo, A., & Yona, S. (2022). Intervensi nonfaramakologik untuk mengurangi cemas dalam meningkatkan kuliatas hidup ODHA. Jurnal Keperawatan Silampari, 5 (2), 1036–1049. doi: 10.31539/jks.v5i2.3036.
  23. Tam, C.C., Sun, S., Yang, X., Li, X., Zhou, Y., & Shen, Z. (2021). Psychological distress among HIV healthcare providers during the COVID-19 pandemic in China: Mediating roles of institutional support and resilience. AIDS and Behavior, 25, 9–17. doi: 10.1007/s10461-020-03068-w.
  24. Tansey, T.N., Bezyak, J., Kaya, C., Ditchman, N., & Catalano, D. (2016). Resilience and quality of life: An investigation of Kumpfer's resilience model with persons with spinal cord injuries. Rehabilitation Counseling Bulletin, 60 (3), 163–174. doi: 10.1177/0034355216655146.
  25. The Joint United Nations Programme on HIV/AIDS (UNAIDS). (2021). Confronting inequalities: Lessons for pandemic responses from 40 years of AIDS. Global AIDS Upadate. Retrieved from: https://www.unaids.org/sites/default/files/media_asset/2021-global-aids-update_en.pdf
  26. Wallace, D.D., Pack, A., Castonguay, B.U., Stewart, J.L., Schalkoff, C., Cherkur, S., Schein, M., Go, M., Devadas, J., Fisher, E.B., & Golin, C.E. (2019). Validity of social support scales utilized among HIV-infected and HIV-affected populations: A systematic review. AIDS and Behavior, 23 (8), 2155–2175. doi: 10.1007/s10461-018-2294-z.
  27. Wani, M.A. (2020). Social support, self-esteem and quality of life among people living with HIV/AIDS in Jammu and Kashmir India. Anales de Psicologia, 36 (2), 232–241. doi: 10.6018/analesps.351111.
  28. Wani, M.A., & Sankar, R. (2017). Social support, quality of life and suicidal ideation among people living with HIV/AIDS in ART Center, Jammu. Indian Journal of Positive Psychology, 8 (3), 274–279. doi: 10.15614/ijpp/2017/v8i3/161881.
  29. Wenger, L.D., Kral, A.H., Bluthenthal, R.N., Morris, T., Ongais, L., & Lambdin, B.H. (2021). Ingenuity and resiliency of syringe service programs on the front lines of the opioid overdose and COVID-19 crises. Translational Research, 234, 159–173. doi: 10.1016/j.trsl.2021.03.011.
  30. World Health Organization (WHO). (2021). Updated recommendations on HIV prevention, infant diagnosis, antiretroviral initiation and monitoring. Retrieved from: https://www.who.int/publications/i/item/9789240022232
  31. Wu, X., Chen, J., Huang, H., Liu, Z., Li, X., & Wang, H. (2015). Perceived stigma, medical social support and quality of life among people living with HIV/AIDS in Hunan, China. Applied Nursing Research, 28 (2), 169–174. doi: 10.1016/j.apnr.2014.09.011.
  32. Yang, X., Zhao, L., Wang, L., Hao, C., Gu, Y., Song, W., Zhao, Q., & Wang, X. (2016). Quality of life of transgender women from China and associated factors: A cross-sectional study. Journal of Sexual Medicine, 13 (6), 977–987. doi: 10.1016/j.jsxm.2016.03.369.
  33. Yona, S., Edison, C., Nursasi, A.Y., & Ismail, R. (2023). Self-awareness as the key to successful adherence to antiretroviral therapy among people living with HIV in Indonesia: A grounded theory study. Belitung Nursing Journal, 9 (2), 176–183. doi: 10.33546/bnj.2480.
  34. Zhou, K., Li, H., Wei, X., Yin, J., Liang, P., Zhang, H., Kou, L., Hao, M., You, L., Li, X., & Zhuang, G. (2017). Relationships between received and perceived social support and health-related quality of life among patients receiving methadone maintenance treatment in Mainland China. Substance Abuse: Treatment, Prevention, and Policy, 12 (1), 33. doi: 10.1186/s13011-017-0116-3.

How to Cite

Firman, F., Yona, S., & Waluyo, A. (2025). Resilience, Social Support, and Quality of Life Among People Living with HIV/AIDS. Jurnal Keperawatan Indonesia, 28(1), 35–44. https://doi.org/10.7454/jki.v28i1.1337