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Jurnal Keperawatan Indonesia
Articles
VIEWS: 970
10.7454/jki.v17i1.375
Submitted: 2016-09-13
Published: 2014-03-09

Analisis Faktor yang Memengaruhi Kualitas Hidup Anak Thalassemia Beta Mayor

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Dini Mariani

Poltekkes Kemenkes Tasikmalaya
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Yeni Rustina

Fakultas Ilmu Keperawatan, Universitas Indonesia, Depok 16424, Indonesia
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Yusran Nasution

Fakultas Kesehatan Masyarakat, Universitas Indonesia, Depok 16424, Indonesia
kualitas hidup anak thalasemia

Abstract

Thalasemia ß termasuk penyakit yang memerlukan pengobatan dan perawatan yang berkelanjutan. Hal tersebut berdampak terhadap kualitas hidup anak. Tujuan  penelitian untuk mengidentifikasi dan menjelaskan faktor yang memengaruhi kualitas hidup anak dengan thalasemia beta mayor. Penelitian ini menggunakan rancangan cross sectional, dengan jumlah sampel sebanyak 84 responden yang berasal dari dua rumah sakit. Hasil penelitian menunjukkan terdapat hubungan antara kualitas hidup dengan kadar  Hb  pre-transfusi (p= 0,003, α= 0,05), dukungan keluarga (p= 0,003, α= 0,05) dan  penghasilan (p= 0,046, α= 0,05). Hasil multivariat didapatkan bahwa kadar Hb pre-transfusi merupakan faktor yang paling memengaruhi. kualitas hidup anak. Rekomendasi dari penelitian ini adalah perlu dilakukan penelitian lanjutan dengan waktu yang lebih lama dan mengembangkan variabel-variabel lain yang belum diteliti.

 

 Abstract

 

Analysis Factors Affecting the Quality of Life of Children Beta Thalassemia Mayor. Beta thalasemia is a disease that requires sustainable medication and treatment. Iit affects on the quality of life of children. The purpose of this study to identified and explained factors that affect the quality life of children  with beta  thalasemia  major. This study used cross-sectional design, with a sample 84 respondents from two hospitals. The results showed a significant relations between quality of life  with  pretransfusi  Hb levels (p= 0,003; α= 0,05),  family support (p= 0,003; α= 0,05), and income (p= 0,046; α= 0,05). Multivariate results obtained that pretransfusi Hb levels are the most affecting factors. Recommendations from  this  study  is  necessary  to study  further with a  longer  of  time  and   develop   other  variables  that  have not been studied.

 

Keywords: child’s quality of life, thalasemia

References

  1. Anderson, L.J., Wonke, B., Prescott, E., Holden, S., Walker, J. M., & Pennell, D. J. (2002). Comparison of effects of oral deferiprone and subcutaneous desferrioxamine on myocardial iron concentrations and ventricular function in beta thalassaemia. The Lancet, 360 (8), 516–520.
  2. Ariawan, I. (1998). Besar dan metode sampel pada penelitian kesehatan. Jakarta: Jurusan Biostatistik dan Kependudukan FKM UI.
  3. Bulan, S. (2009). Faktor-faktor yang berhubungan dengan kualitas hidup anak thalasemia beta mayor. Diperoleh dari http://eprints.undip.ac .id/24717/1/Sandra_Bulan.pdf.
  4. Clarke, S.A., Skinner, R., Guest, J., & Darbyshire, P. (2009). Health-related quality of life and financial impact of caring for a child with thalassaemia major in the UK. Journal compilation, 43 (9), 118–122. doi: 10.1111/j.1365-2214.2009.01043.x.
  5. Dahlui, M., Hishamsah, M.I., Rahman, A., & Aljunid, S.M. (2009). Quality of life in transfusion dependent thalassemia patients on desferrioxamine treatment. Singapore Med J, 50 (8), 794–799. Diperoleh dari http://smj.sma.org.sg/5008/5008a8.pdf
  6. Dubey, A.P., Parakh, A., & Dublish, S. (2008). Current trends in the management of beta thalassemia. Indian Journal of Pediatrics, 75 (7), 739–743. doi: 10.1007/s12098-008-0140-4.
  7. Hawsawi, Z.M., Saifary, M.H., Tarawah, A.M., Zolaly, M.A., & Hegaily, A.R. S. (2010). Experince with combination therapy of deferiprone and desferrioxamine in beta thalassemia major patients with iron overload at maternity and children hospital Al Madinah Al Munawarah Saudi Arabia. Journal of Taibah University Medical Sciences, 5 (1), 27–35. doi: http://dx.doi.org/10.1016/S1658-3612(10)70121-9.
  8. Ismail, A., Campbell, M.J., Ibrahim, H.M., & Jones, G.L. (2006). Health related quality of life in Malaysian children with thalasemia. Diperoleh dari http://www.hqlo.com/content /4/1/39.
  9. Khan, F.U., Ayub, T., & Shah, S.H. (2007). Frequency of complications in beta thalassemia major in D.I. Khan. Biomedical, 23 (6), 31–33. Diperoleh dari http://www. thebiomedicapk.com/articles/93.pdf.
  10. Khurana, A., Katyal, A., & Marwaha, R.K. (2006). Psychosocial burden in thalasemia. Indian Journal of Pediatrics, 73 (10), 877–880. Diperoleh dari http://www.ncbi.nlm.nih.gov /pubmed/17090897.
  11. Knapp, C.A., Madden, V.L., Curtis, C.M., Sloyer, P., & Shenkman, E.A. (2010). Family support in pediatric palliative care: How are families impacted by their children’s illnesses? Journal of Palliative Medicine, 13 (4), 421–426. doi: 10.1089/jpm.2009.0295.
  12. Mazzone, L., Battaglia, L., Andreozzi, F., Romeo, M.A. & Mazzone, D. (2009). Emotional impact in ß thalassemia major children following cognitive-behavior family therapy and quality of life of caregiving. doi: 10.1186/1745-0179-5-5.
  13. Oliviery, N. (1999). The ß thalasemia. The New England Journal of Medicine, 341 (1), 99–109. doi: 10.1056/NEJM199907083410207
  14. Potts, N.L. & Mandleco, B.L. (2007). Study guide to accompany pediatric nursing (Second Edition). Canada: Thomson.
  15. Pusponegoro, H.D., Hadinegoro, S.R.S., Firmanda, D., Triadjaja, B., Pudjiadi, A.H., & Kosim, M.S., (2005). Standar medis pelayanan kesehatan anak (Edisi 1). Jakarta: IDAI.
  16. Rekam Medis RSUD Kabupaten Ciamis. (2010). Laporan kasus rawat inap dan rawat jalan RSUD Kabupaten Ciamis. Ciamis: RSUD Kabupaten Ciamis.
  17. Rekam Medis RSUD Kota Tasikmalaya. (2010). Laporan kasus rawat inap dan rawat jalan RSUD Kota Tasikmalaya. Tasikmalaya: RSUD Kota Tasikmalaya
  18. Sastroasmoro, S., & Ismael, S. (2010). Dasar-dasar metodologi penelitian klinis (Edisi ketiga). Jakarta: CV Sagung Seto.
  19. Seid, M., Varni, J.W., Segall, D., & Kurtin, P.S (2004). Health-related quality of life as predictor of pediatric healthcare costs: A two-year prospective cohort analysis. Health and Quality of Life Outcomes. Diperoleh dari http://www.hqlo.com/content/2/1/48.
  20. Shaligram, D., Girimaji, S.C., & Chaturvedi, S.K. (2007). Psychological problems and quality of life in children with thalasemia. Indian Journal of Pediatric, 74 (8), 727–730. doi: 10.1007/s12098-007-0127-6
  21. Thalasemia International Federation (TIF). (2008). Guidelines for the clinical management of thalasemia. Diperoleh dari http:/www.thalase mia.org.cy.
  22. Thavorncharoensap, M., Torcharus, K., Nuchprayoon, I., Riewpaiboon, A., Indaratna, K., & Ubol, B.O. (2010). Factors affecting health related quality of life in thalassaemia thai children with thalasemia. Journal BMC Disord, 10 (1), 1–10. doi: 10.1186/1471-2326-10-1.

How to Cite

Mariani, D., Rustina, Y., & Nasution, Y. (2014). Analisis Faktor yang Memengaruhi Kualitas Hidup Anak Thalassemia Beta Mayor. Jurnal Keperawatan Indonesia, 17(1), 1–10. https://doi.org/10.7454/jki.v17i1.375