Skip to main content Skip to main navigation menu Skip to site footer
Articles
VIEWS: 1886
Published: 2018-03-22

REGULASI DIRI PADA PENYAKIT KRONIS - SYSTEMIC LUPUS ERYTHEMATOSUS : KAJIAN LITERATUR

STIKES MAJAPAHIT MOJOKERTO
depression fatigue self management self regulation and systemic lupus erythemathosus

Abstract

Abstrak


Penyakit Systemic Lupus Erythematosus (SLE) adalah salah satu penyakit yang terkait dengan sistem imun. Penyakit SLE masih tergolong penyakit yang awam di Indonesia. Banyak faktor yang memengaruhi terjadinya kasus SLE di Indonesia, antara lain belum terpenuhinya kebutuhan pasien dan keluarganya tentang informasi, pendidikan, dan dukungan yang terkait dengan SLE. Hal ini diperlukan agar pasien mudah dalam penanganan penyakit terkait. Artikel dikumpulkan melalui database elektronik CINAHL, ScienceDirect, dan Proquest menggunakan kata kunci manajemen diri, sistemik lupus erythemathosus, kelelahan, dan depresi. Kriteria inklusi adalah penelitian terhadap jurnal yang diterbitkan pada periode antara tahun 2008-2017. Upaya mengurangi efek negatif penyakit kronis mutlak diperlukan. Salah satunya adalah penerapan program manajemen diri pada pasien SLE. Telah terbukti bahwa penerapan manajemen diri memiliki efek dalam mengurangi kelelahan dan depresi, dan meningkatkan keterampilan mengatasi dan efikasi diri. Pengetahuan dan pemahaman tentang program keperawatan yang relevan dalam pengelolaan penyakit kronis harus dikembangkan dalam lingkup praktik dan penelitian. Oleh karena itu, partisipasi aktif pasien dan keluarga merupakan komponen penting dalam keberhasilan program pengobatan.

 Kata kunci : depresi, kelelahan, manajemen diri, regulasi diri, dan sistemik lupus erythemathosus 

Abstract

 

Self Regulation in Chronic Illness - Systemic Lupus Erythematosus: Literature Review. Systemic Lupus Erythematosus (SLE) is one of the diseases that associated with immune system. SLE is still classified as a disease that lay in Indonesia. Many factors that cause this disease are not detected, one of which has not fulfilled the needs of patients and family of information, education, and support that is associated with SLE. This is necessary to enable the patient in self-management related illness. Articles were collected through electronic databases CINAHL, Science Direct, and ProQuest using keywords self-management, systemic lupus erythematosus, fatigue, and depression. The inclusion criteria were studies to journals published in the period between the years 2008-2017. Efforts to reduce the negative effects of chronic disease is absolutely necessary. One is the application of self-management program in patients with SLE. It has been proven that the application has an effect in reducing fatigue and depression, and increasing coping skills and self-efficacy. Knowledge and understanding of relevant nursing programs in chronic disease self-management should be developed within the scope of practice and research. So that the active participation of the patient and family is an important component in the success of a treatment program.

 

Keywords : depression,  fatigue, self management, self regulation, and systemic lupus erythemathos

References

  1. Bagnasco, A., Di Giacomo, P., Da Rin Della Mora, R., Catania, G., Turci, C., Rocco, G., & Sasso, L. (2013). Factors influencing self-management in patients with type 2 diabetes: a quantitative systematic review protocol. Journal of Advanced Nursing, 187–200. https://doi.org/10.1111/jan.12178
  2. Bartels, C.M., Diamond, H.S., Muller, D., Farina, A.G., Goldberg, E., Hildebrand, J., … Lakdawala, V.S. (2013). Systemic Lupus Erythematosus (SLE). Retrieved from http:// www.emedicine.medscape.com
  3. Bomar, M.G. (2012). Systemic Lupus Erythematosus: Self Management Skills in Chronic Illness. Retrieved from http://shp.missouri. edu/vhct/case2700/self_mgmt.htm
  4. Cleanthous, S., Tyagi, M., Isenberg, D.A., & Newman, S.P. (2012). What do we know about self-reported fatigue in systemic lupus erythematosus? Lupus, 21 (5), 465–476. https://doi.org/10.1177/0961203312436863
  5. Kemenkes RI. (2017). Situasi Lupus di Indonesia. Jakarta: Pusdatin–Pusat Data dan Informasi Kementerian Kesehatan RI. ISSN: 2442-7659.
  6. Drenkard, C., Dunlop-Thomas, C., Easley, K., Bao, G., Brady, T., & Lim, S. S. (2012). Benefits of a self-management program in low-income African-American women with systemic lupus erythematosus: Results of a pilot test. Lupus, 21 (14), 1586–1593. https://doi.org/10. 1177/0961203312458842
  7. Griffiths, B., Mosca, M., & Gordon, C. (2005). Assessment of patients with systemic lupus erythematosus and the use of lupus disease activity indices. Best Practice & Research. Clinical Rheumatology, 19 (5), 685–708. https://doi.org/10.1016/j.berh.2005.03.010
  8. Karlson, E.W., Liang, M.H., Eaton, H., Huang, J., Fitzgerald, L., Rogers, M.P., & Daltroy, L.H. (2004). A randomized clinical trial of a psychoeducational intervention to improve outcomes in systemic lupus erythematosus. Arthritis and Rheumatism, 50 (6), 1832–1841. https://doi.org/10.1002/art.20279
  9. Kasjmir, Y., Handono, K., Wijaya, L. K., Hamijoyo, L., Albar, Z., Kalim, H., … Ongkowijaya. (2011). Rekomendasi Perhimpunan Reuma-tologi Indonesia untuk Diagnosis dan Pengelolaan Lupus Eritematosus Sistemik. Jakarta: Perhimpunan Reumatologi Indonesia.
  10. Koroma, F. (2012). Systemic lupus erythematosus: nurse and patient education. Nursing Standard (Royal College of Nursing), 26(39), 49–58.
  11. Leong, L.T., Wa, S., Peggy, L., & Chio, H.I. (2013). Understanding Watson's caring model in the self-management program for chronic heart failure patient. Macau Journal of Nursing, 12 (1), 42–48.
  12. Lundman, B., Aléx, L., Jonsén, E., Norberg, A., Nygren, B., Santamäki Fischer, R., & Strandberg, G. (2010). Inner strength--a theoretical analysis of salutogenic concepts. International Journal of Nursing Studies, 47 (2), 251–260. https://doi.org/10.1016/j.ijnurs tu.2009.05.020
  13. Nery, F.G., Borba, E.F., Viana, V.S.T., Hatch, J.P., Soares, J.C., Bonfá, E., & Neto, F.L. (2008). Prevalence of depressive and anxiety disorders in systemic lupus erythematosus and their association with anti-ribosomal P antibodies. Progress in Neuro-Psychophar-macology & Biological Psychiatry, 32(3), 695–700. https://doi.org/10.1016/j.pnpbp.20 07.11.014
  14. Panjwani, S. (2009). Early diagnosis and treatment of discoid lupus erythematosus. Journal of The American Board of Family Medicine, 22(2). https://doi.org/10.3122/jabfm.2009.0 2.080075
  15. Robinson, M., Cook, S.S., & Currie, L.M. (2011). Systemic lupus erythematosus: a genetic review for advanced practice nurses. Journal of the American Academy of Nurse Practitioners, 23 (12), 629–637. https://doi. org/10.1111/j.1745-7599.2011.00675.x
  16. Sehlo, M.G., & Bahlas, S.M. (2013). Perceived illness stigma is associated with depression in female patients with systemic lupus erythematosus. Journal of Psychosomatic Research, 74 (3), 248–251. https://doi.org/ 10.1016/j.jpsychores.2012.09.023
  17. Smeltzer, S.C., Bare, B.G., Hinkle, J.L., & Cheever, K.H. (2010). Brunner and Suddarth textbook of medical surgical nursing (12th Ed.). Philadelphia: Lippincott Williams & Wilkins.
  18. Sohng, K. Y. (2003). Effects of a self-management course for patients with systemic lupus erythematosus. Journal of Advanced Nursing, 42 (5), 479–486.
  19. Tsokos, G.C. (2011). Systemic lupus erythematosus. The New England Journal of Medicine, 365 (22), 2110–2121. https://doi.org/10.10 56/NEJMra1100359
  20. Udlis, K.A. (2011). Self-management in chronic illness: concept and dimensional analysis. Journal of Nursing and Healthcare of Chronic Illness, 3 (2), 130–139. https://doi. org/10.1111/j.1752-9824.2011.01085.x
  21. Viglund, K., Jonsén, E., Strandberg, G., Lundman, B., & Nygren, B. (2013). Inner strength as a mediator of the relationship between disease and self-rated health among old people. Journal of Advanced Nursing. https://doi. org/10.1111/jan.12179
  22. Weinert, C., Cudney, S., & Spring, A. (2008). Evolution of a conceptual model for adaptation to chronic illness. Journal of Nursing Scholarship : An Official Publication of Sigma Theta Tau International Honor Society of Nursing / Sigma Theta Tau, 40(4), 364–372. https://doi.org/10.1111/j.1547-50 69.2008.00241.x
  23. Wheeler, T. (2010). Systemic lupus erythematosis: the basics of nursing care. British Journal of Nursing (Mark Allen Publishing), 19(4), 249–253. Retrieved from http://www.ncbi. nlm.nih.gov/pubmed/20220676
  24. Zakeri, Z., Shakiba, M., Narouie, B., Mladkova, N., Ghasemi-Rad, M., & Khosravi, A. (2012). Prevalence of depression and depressive symptoms in patients with systemic lupus erythematosus: Iranian experience. Rheumatology International, 32 (5), 1179–1187. https://doi.org/10.1007/s00296-010-17 91-9

How to Cite

Fatmawati, A. (2018). REGULASI DIRI PADA PENYAKIT KRONIS - SYSTEMIC LUPUS ERYTHEMATOSUS : KAJIAN LITERATUR. Jurnal Keperawatan Indonesia, 21(1), 43–50. https://doi.org/10.7454/jki.v21i1.542