PENGALAMAN IBU MERAWAT ANAK USIA SEKOLAH DENGAN AUTIS

Siti Chodidjah, Alfani Prima Kusumasari


DOI: http://dx.doi.org/10.7454/jki.v21i2.545


Abstract


Autis merupakan salah satu jenis gangguan perkembangan dimana anak mengalami gangguan dalam interaksi sosial, berkomunikasi, serta masalah perilaku dan kognitif. Hal ini membuat pengasuhan anak autis menjadi penuh tantangan. Penelitian ini merupakan penelitian kualitatif yang bertujuan untuk mengeksplorasi pengalaman ibu dalam merawat anak usia sekolah yang mengalami autis. Data didapatkan dari wawancara semi terstruktur pada 8 orang anak usia 8 sampai 15 tahun yang dipilih dengan menggunakan metode snow ball sampling. Data dianalisis dengan menggunakan pendekatan Collaizi. Stres yang dialami orang tua selama perawatan anak yaitu meliputi: mengalami stres emosional, perlu mengontrol emosi anak, mengkhawatirkan hubungan dengan sibling, mengkhawatirkan masa depan anak, menghadapi masalah keuangan, dan mengupayakan pendidikan inklusi. Penelitian ini merekomendasikan perlunya upaya mensosialisasikan autis pada komunitas agar kualitas hidup ibu dan anak penderita autis menjadi lebih baik.

 

Kata kunci: stress ibu yang memiliki anak autis, koping orang tua, anak autis usia sekolah

 


 Abstract

The Experience of Mother Caring for School Age Children with Autism. Autism is a type of developmental disorder characterized by social interaction impairment, communication difficulties, and kognitif and behavior problems. This condition causes rearing child with autism present with profound challenges.This research aimed to explore the experience of mothers of school age children with autism. The data was obtained from 8 school aged children, chosen with snow balling sampling technique and was analized with Collaizi’s method. Themes found mother’s stress which included: experiencing emotional stress, the need to control child’s behaviour, worried about child’s problem with siblings, child’s future issues, financial strain, and struggle for child’ inclusion education. It is recommended to increase community autism awareness to facilitate community’s acceptance to children with autism and to improve the quality of life among mothers and children with autism.

 

Keywords: stress of mother of autism child, parental coping, school aged children with autism


Keywords


stress ibu yang memiliki anak autis; koping orang tua; anak autis usia sekolah

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References


Angell, M.E., Meadan, H., & Stoner, J.B. (2012). Experiences of sibling of individuals with autism spectrum disorders. Autism Research & Treatment. 2012, 1–11. Article ID 949586. doi: 10.1155/2012/ 949581.

Bashir, A., Bashir, U., Lone, A., & Ahmad, Z. (2014). Chalenges faced by families of autistic children. International Jurnal of Interdisciplineary Research and Inno-vations, 2 (1), 64–68.

Chan, K.S., Lam, C. B., Law, N.C., & Cheung, R.Y. (2018). From child autistic symptoms to parental affective symptoms: A family process model. Reseach in Developmental Disabilities, 75, 22–31.

Centers for Disease Control and Prevention. (2012). Autism and development dis-abilities monitoring network. Retrieved from https://www.cdc.gov/ncbddd/autism /documents/ADDM-Fact-Sheet-comp508. pdf

Doron, H., & Sharabany, A. (2013). Marital pattern among parents to autistic children. Psychology, 4 (4), 445–453.

Hoogsteen, L., & Woogate, R.L . (2013). The lived experience of parenting a child with autism in a rural area: Making the invisible, visible. Journal of Pediatric Nursing, 39 (5), 33–37.

Koegel, L., Matos-Fredeen, R., Lang, R., & Koegel, E. (2011). Intervention for children with autism spectrum disorders in inclusive school setting, cognitive, and behavioral practice. Cognitive and Behavioral Practice, 19 (3), 401–412. doi: 10.1016/j.cbpra.2010.11.003.

Karst, J.S., & van Hecke, A V. (2012). Parent and family impact of autism spectrum disorders: A review and proposed model for intervention evaluation. Clinical Child and Family Psychology Review, 15 (3), 247–277. https://doi.org/10.1007/s10567-012-0119-6.

Marsack, C.N., & Hopp, F.P. (2018). Informal support, health, and burden among parents of adult children with autism. Gerontologist, 1–10. doi: 10.1093/geront/ gny082.

Majoko, T. (2016). Inclusion of children with autism spectrum disorders: Listening and hearing to voices from the grassroots. Journal of Autism and Developmental Disorders, 46 (4), 1429–1440. https://doi. org/10.1007/s10803-015-2685-1.

National Center of Biotechnology Information. (2012). Autism: Pervasive developmental disorder–autism; Autistic spectrum disorder. Retrieved from http://www.ncbi.nlm.nih. gov/pubmedhealth/PMH0002494/

Nolcheva, M. & Trajovski, V. (2015). Exploratory study: stress, coping, and support of children with autism spectrum disorder. Journal of special education and rehabilitation, 16 (3), 84-100. doi: 1031 515/JSER-2015-0013

Neff, K.D., & Faso, D.J. (2014). Self-compassion and well being in parents of children with autism. Mindfulness, 6 (4), 938–947. doi: 10.1007/s12671-014-0359-2

Sitimin, S.A., Fikry, A., Ismail, Z., & Hussein, N. (2017). Work-family conflict among working parents of children with autism in Malaysia. Procedia Computer Science, 105, 345–352. https://doi.org/10.1016/ j.procs.2017.01.232.

Sharpe, D.L., & Baker, D.L. (2007). Financial issues associated with having a child with autism. Journal of Family and Economic Issues, 28 (2), 247–264. https://doi.org/10. 1007/s10834-007-9059-6.

Watson, S., Hayes, S., Radford-Paz, E., & Coon, K. (2011). “I’m hoping, I’am hoping..”. Thought about the future from families of children with autism or fetal alcohol spectrum disorder in Ontario. Journal of Developmental Disabilities, 19 (3), 76–93.

Wang, Y., Xiao, L., Chen, R.S., Chen, C., Xun, G.L., Lu, X.Z., … Ou, J.J. (2018). Social impairment of children with autism spectrum disorder affects parental quality of life in different ways. Psychiatry Research, 266, 168–174. https://doi.org/ 10.1016/j.psychres.2018.05.057.


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